Empowering Personalized Medicine & Health Research

01 juli 2015

On Wednesday 4 November, BBMRI-NL, Federa-COREON, DTL/ELIXIR-NL, EATRIS, FHI, NFU, and FMS host a joint conference entitled 

Empowering Personalized Medicine & Health Research    programma    inschrijven

Connecting Researchers, Patients and Enabling Technologies

Venue: Theater de Flint, Amersfoort

Time: 09:00 – 18:00 hrs 

Why this conference? Biomedical research is fast progressing to a point where highly personalized precision medicine is no longer a dream, but a realistic goal. Achieving that goal means empowering people to lead long, healthy lives, using medicine as a tool to prevent and predict disease.
However, before this new healthcare becomes the reality for patients and society at large, a magnitude of scientific work has to be performed. For instance, the development and clinical validation of new drugs that target key biological Achilles’ heels of diseases, as well as biomarker-based diagnostics that can predict who will and who won’t benefit; but also genomics and imaging-based determinants of healthy aging.
This scientific work comes with complex logistics and requires professional level large scale infrastructures for e.g. biobanking, omics, big data and imaging to support the studies involved. The scope and size of the infrastructures involved extend well beyond what individual researchers can cope with, and even beyond individual institutions, given the multicenter and often international nature of the studies involved.
The need for researchers, clinicians, bio-informaticians, industry, and other stakeholders like funders, patients and the general public to work closely together towards enabling precision medicine is widely understood. Many organizations and initiatives are hatching plans and rolling out projects to pool their resources and activities wherever profitable. In the USA earlier this year, the Obama administration launched a nationwide program called Precision Medicine USA. Can we, in the Netherlands, reach a similar level of collaboration? Are we well underway toward reaching the required level of collaboration, and what examples are there? What are the challenges that lie ahead, both technological and societal (ELSI)? 

Organizing parties. For this conference, several major players in the field of health research and technology for the life sciences have joined forces:
BBMRI-NL, representing Dutch biobanking as resources for research www.bbmri.nl
Federa, promotes a sound research environment. COREON, promotes a sound regulatory environment.  www.federa.org/coreon
DTL/ELIXIR-NL, platform for technological initiatives in the life sciences, representing the Dutch node in ELIXIR www.dtls.nl  
EATRIS, bridge between medical research and clinical applications www.eatris.eu 
FHI, representing the industry that develops equipment for the life sciences www.fhi.nl 
NFU, representing the eight Dutch university medical centres (UMC’s) www.nfu.nl 
FMS, the Federation for Medical Specialists, representing clinical researchers www.demedischspecialist.nl

Together, these parties will use the conference to showcase existing infrastructures and their efforts to connect and interact, and address the issues that accompany these efforts. Also, attention will be given to the question what is needed to achieve more and better collaboration between the infrastructures. 

Keynote: Professor Hans Clevers. Professor Hans Clevers (Hubrecht Institute, ex-chair KNAW, scientific director of the new Prinses Máxima Centrum for Child Oncology) has agreed to provide the keynote for this day. 

Further details on venue, programme and registration will be forthcoming. We hope to be able to greet you on 4 November.
You may receive this mail more than once, due to overlap in the organizing parties’ address books. Our apologies! Also, if you do not wish to receive further notice of this conference, please send an email to info@bbmri.nl stating so. 

The conference ‘Empowering Personalized Medicine & Health Research; Connecting Researchers, Patients and Enabling Technologies’ is endorsed by the Top Sector Life Sciences and Health

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